| |
Listed
below are recommended books for persons with a traumatic
brain injury or their family caregivers. Some are
inspirational biographies or autobiographies. Others
are resource books to help understand the impacts
and consequences of TBI or to help you access services,
benefits or jobs.
THE
NEUROEDUCATION OF NICO by Antonio Battro. 2001. Cambridge University Press. The
remarkable story of a boy who had his entire right
cerebral hemisphere removed to stop severe epileptic
seizures that threatened to kill him. Dr. Battro,
an Argentine physician who studied the process of
cognitive development in children under Jean Piaget,
used the computer to help Nico overcome the lack of
half his brain. With the computer Nico could overcome
deficiencies in left eye visual processing, left handed
writing and drawing and spatial organization. He gradually
became as competent in language, math, art and other
basic subjects as his peers in school, as a result
of activation and re-wiring of latent neural circuits
in his preserved left hemisphere.
A
FAMILY TRAGEDY by Pat Abrahamson. 1997. HDI Publishers, Inc.
Houston, Texas. A true story told with insight, sorrow,
humor and grace by the mother of an adult son who
suffered a severe anoxic brain injury from a cardiac
arrest. Ms. Abrahamson moved her son back into her
house after his divorce, and she gradually took over
the complete management of his lifelong care, as she
realized no one was going to take of him in a way
she could live with. She personally involves the reader
in the trials, tribulations and rewards of someone
looking foward to retirement who is forced to become
the life support system for an adult child with severe
neuro-behavioral problems from a TBI, including obssessive
repetition of certain phrases and compulsive physical
touching and poking of other people.
B.I.A.
NATIONAL DIRECTORY OF BRAIN REHABILITATION SERVICES
published annually by the Brain Injury Association, Inc.
105 North Alfred Street, Alexandria, VA 22314. May
be ordered by calling 703-236-6000 or on the web by
clicking on bia.usa. This helpful directory has state
by state listings of every imaginable kind of service
provider to persons with a TBI. Examples include case
management, neurologists, neuropsychologists, day
treatment, community re-integration, behavioral
intervention, in-home respiratory therapy, cognitive
and speech therapy, recreation programs and yes, even
attorneys. Also includes a glossary of brain injury
terms and a list of publications about living with
a TBI. http://www.biausa.org
BLACKWELL DICTIONARY OF NEUROPSYCHOLOGY edited by J. Graham Beaumont et al. 1996. Blackwell Publishers.
Cambridge, Mass. A 788 page hardbound book containing
the definitions of 8000 key terms used in clinical
neuropsychology supplemented by drawings, photos and
graphs. A very useful book.
CATASTROPHE OF COMA
by E.A. Freeman. 1989. Sheridan
Medical Books. Dobbs Ferry, New York. A clear, detailed
and comprehensive work for families of persons in
coma, which is designed to demystify coma and assist
family members to take an active part in supporting,
monitoring and stimulating their comatose loved one
as he gradually recovers consciousness and function.
Helps families to understand and interpret the behavior
of their loved one. Equips them to speak intelligently
with the treating physicians, to evaluate their care
program, to suggest improvements and make informed
decisions.
CONFRONTING
TRAUMATIC BRAIN INJURY
by William Winslade. 1998. Yale
University Press. New Have, Conn. A well researched,
wide ranging look, from the public health policy perspective,
of how society's failure to prevent traumatic brain
injury and adequately fund rehabilitation of persons
with a TBI, brings hardship and suffering to individuals,
families and communities. Filled with facts and statistics
for TBI advocates to use, as well as good suggestions
for new laws and policies.
COPING
WITH MILD TRAUMATIC BRAIN INJURY by
Diane Roberts Stoler, EdD. 1998. Avery Publishing
Group. Garden City Park , New York. A good introduction
to the physical, cognitive, psychological and
behavioral problems that make up what is variously
called Post-Concussive Syndrome, Mild Traumatic Brain
Injury and Minor Closed Head Injury. It contains practical
suggestions for dealing with each of the problems,
and for some, has become a kind of survival guide
during recovery from "mild" TBI.
HEAD
INJURY AND THE FAMILY
by Arthur Dell Orto. 1994. PMD
Publishers Group, Inc. Winter Park, Florida. Through
extensive use of personal statements by survivors
of brain injury, and their family members, this book
chronicles the destructive and devastating affects
of TBI on the "family system." The author
then traces the recovery process, again with the use
of personal statement, and helps guide the reader
to effective coping, support and rehabilitation strategies
and techniques.
JOB
SEARCH HANDBOOK FOR PEOPLE WITH DISABILITIES by
Dr. Daniel J. Ryan 2000 JIST Works, Inc. Indianapolis,
IN 1-800-648-5478. A good, inexpensive and highly
practical, step by step guide to rejoining the world
of work after sustaining a disability. Contains useful
strategies for self-assessement, finding jobs, drafting
a resume, applying, interviewing, etc., all from the
perspective of a person with a disability.
KEEP
YOUR BRAIN ALIVE by Lawrence Katz. 1999. Workman Publishing. Katz, a neurobiologist
at Duke University with expertise on the development
and decline of brain function, has written this guide
to what he calls "Neurobics." These are
sets of mental exercises to activate one's own brain
to the fullest extent to stave off cognitive decline
and keep the mind fresh, agile and vigorous. It includes
many forms of sensory stimulation (taste, touch, smell,
hearing and sight) as well as challenges to make routine
activites more interesting. For example, one could
try a totally new driving route to work, while playing
opera on the care stereo and breating in a spritz
of rosemary oil. Katz believes that sensory
activiation and cognitive challenges help old brain
cells replace lost dendrites and dendritic spines
with new ones. Why not take a chance? The book costs
only $8.95.
OVER
MY HEAD by Claudia L. Osborn, M.D. 1998. The Peripatetic Publisher.
Naples, Flordia. Became an instant classic upon its
release. Dr. Osborn has become a star on the TBI lecture
circuit, and deservedly so. Whether in person, or
in her book, she tells her story with remarkable candor
and courage as well as an ironic, self-deprecating
wit that can make you burst out laughing in the face
of what seemed overwhelming distress. Dr. Osborne,
a doctor of internal medicine, suffered a severe TBI
while bicycling near her home in Detroit, when a driver
took a corner too fast and ended up in her lane. She
starts the book waking up in a New York apartment
where she is to attend rehab at the Rusk Institute
of NYU. The rest is her unique journey in search of
of recovery, as part of which we get to know her family,
friends and fellow rehab patients, some of whom are
very memorable characters. The book is life affirming
and sprinkled with provocative quips that make us
reflect more deeply.
PHYSICIAN
ICD now in its 9th edition is put
out by Medicode, Inc. of Salt Lake CIty, Utah, and
supplies physicians around the world with an internationally
recognized numerical code for diseases, printed in
alphabetical order. Includes all major disorders of
the central nervous system. Useful to understand all
those annoying codes in your hospital and medical
records. A copy may be ordered from Medicode
by faxing 801-536-1011 or by calling 800-999-4600
RESOURCES FOR PEOPLE WITH DISABILITIES edited by Elizabeth Oakes and John Bradford. 1998. Ferguson
Publishing Company. Chicago, Illinois. A hardbound,
two volume, national directory of foundations, non-profit
advocacy organizations, schools, colleges, product
suppliers, publishers, therapists, clinics and others
who serve the needs of people with disabilities of
all kinds, including those of neurologic origin.
YOUR
MIRACLE BRAIN by Jean Carper. 2000. Harper Collins
Publishers. New York. Hardbound 378 pages. An excellent
overview of how good nutrition builds a healthy, well
functioning brain, and how bad nutrition leads to
short term problems with memory, new learning and
cognitive processing speed and long term problems
including stroke, diabetic neuropathies, Alzheimers
and Parkinsons. Teaches you how foods with hydrogenated
fats or high sugar content harm the brain, and how
to incorporate new foods into your diet which increase
your intake of Omega 3 fatty acids, balance intake
of Omega 3 to Omega 6 fatty acids, increase fiber
to clear low density cholesterol from your bloodstream,
decrease the sugar content of your blood and slow
the infusion of sugar into your blood. Contains many
helpful references to other books and research journal
articles.
|